Live a family The little girl, Karma Abanoub Ishaqa 10-month-old girl, in the hope of treating the little girl who suffers from a rare skin disease, which is epidermolysis bullosa, as a result of which she suffers from serious health complications.
A father seeks help for treatment for his little girl, who suffers from a rare skin disease
Abanoub Ishaq, the father of the girl Karma, said in special statements to Cairo 24 that his child has been suffering from a rare skin disease known as epidermolysis bullosa, since birth, as she was born via caesarean section, and it was found that she had no skin on the limbs and neck, and at that time she did not Doctors were able to diagnose the newborn’s health condition, saying: To the point that the nurse in the hospital after birth said that the child might be suffering from skin flaking due to bathing after birth.
Abanoub Ishaq, the father of the girl Karma, who suffers from epidermolysis bullosa, added: After 4 days, my child was found to be infected with the rare, dangerous disease, and the skin symptoms began to worsen, as the skin wounds became larger. At that time, many hospitals refused to accept her condition, and the doctors told me that the treatment for this disease Outside Egypt.
The girl, Karma, suffers from epidermolysis bullosa
Abanoub Ishaq, the father of the girl Karma, who suffers from epidermolysis bullosa, added that Karma’s condition is getting worse day by day, and she is suffering from serious health complications. Some parts of her body have become without skin, and even her nails have fallen off. For 10 months now, Karma has been receiving treatment. Through a specialized method of changing bandages only and some creams, including a cream, the doctors told us that it is an effective treatment for this disease, but it is not available in Egypt and is available in Germany. Indeed, we provided her with this treatment, which consists of 10 tubes of cream, but after completing the specified doses, we did not find anything. There was no improvement, but her health condition deteriorated.
The father of the girl, Karma, who suffers from epidermolysis bullosa, added that the little girl has become suffering from serious and chronic health complications due to this rare disease, including wounds to the tongue and mouth, and skin ulcers throughout the body, to the point where there is no skin in various parts of her body, but the doctors told us. This disease can be treated through gene therapy that is only available in America.
The father of the child Karma explained: We find difficulties in travel procedures, and we have agreed to treat her at the expense of the church and have opened an international health insurance account for her, but all we need now is to facilitate travel procedures for America for Karma to receive treatment, especially since the American embassy has refused her travel more than once, in While the family has approval for treatment from a hospital in America that specializes in treating immune diseases.
